Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into Sickle Cell Disease and Hemophilia.
10:15 AM - 11:30 AM East Coast USA Time
(D4) Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into Sickle Cell Disease and Hemophilia
(18) Rare Expertise. Rare Data. Real Impact: Best Practices for Embedding Patient Experience Data from Medicaid Beneficiary Advisory Councils and Learnings for Managed Care Pharmacy
4:15 PM - 5:30 PM East Coast USA Time
(M6) Rare Expertise. Rare Data. Real Impact: Best Practices for Embedding Patient Experience Data from Medicaid Beneficiary Advisory Councils and Learnings for Managed Care Pharmacy
Location: Potomac D
Faculty: Brigid Brennan, JD – Friedreich's Ataxia Research Alliance (FARA)
