Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into IgA Nephropathy and Duchenne Muscular Dystrophy
10:30 AM - 11:45 AM East Coast USA Time
(D1) Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into IgA Nephropathy and Duchenne Muscular Dystrophy
(7) Creating sustainable solutions for enhancing CAR T-cell therapy access: technology and site of care solutions to improve outcomes and reduce health disparitiesoutcomes and reduce health disparities
1:30 PM - 2:45 PM East Coast USA Time
(W2) Creating sustainable solutions for enhancing CAR T-cell therapy access: technology and site of care solutions to improve outcomes and reduce health disparities
Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into Sickle Cell Disease and Hemophilia.
10:15 AM - 11:30 AM East Coast USA Time
(D4) Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into Sickle Cell Disease and Hemophilia
(18) Rare Expertise. Rare Data. Real Impact: Best Practices for Embedding Patient Experience Data from Medicaid Beneficiary Advisory Councils and Learnings for Managed Care Pharmacy
4:15 PM - 5:30 PM East Coast USA Time
(M6) Rare Expertise. Rare Data. Real Impact: Best Practices for Embedding Patient Experience Data from Medicaid Beneficiary Advisory Councils and Learnings for Managed Care Pharmacy
Location: Potomac D
Faculty: Brigid Brennan, JD – Friedreich's Ataxia Research Alliance (FARA)
